Monday, April 12, 2010

In Retrospect

Nothing like driving on the freeway to keep my mind off things. I don't need a particular destination. I just drove around, moving in circles. It was just me, my car, and the road... with deafening music on full blast on the radio, I was all by myself, completely oblivious to the outside world.

Everything has been relatively normal these past few days. I can function perfectly, in fact no one would have known that my grandfather recently passed away unless i told them so. It's just that during those times that I find myself alone, the littlest things bring tears to my eyes. The music coming from the radio, old pictures on our family albums, even eating dinner alone makes me think of the person who used to sit on the seat to my left... I know I've been acting a little too melodramatic these past few days, but he's the first person that I used to see on a regular basis that has passed away... never mind if we weren't really that close when I was growing up, never mind if we had countless arguments, never mind if we didn't really get along during my younger years, and never mind if he's not really my grandfather, at least biologically speaking... every time i think about him, especially how he looked on his last few days, i just couldn't help it. I just couldn't help but cry.

I have come to realize that I'm such a lousy doctor--- at least when it comes to my family. I never wanted to be a doctor, and the only way for me to resign myself to this fate is by viewing this profession as simply work--- i derive no pleasure nor personal satisfaction from it... it's just a way to make ends meet. Thus, for the past couple of years I strived to separate work from home, because home is the place where i find refuge, where I can be away from the things that I do not want to do. So when any of them would ask me questions about their health or about anything medically related, i get annoyed. I would just think of the simplest, shortest answer possible just to get it over and done with. When i'm in such a bad mood, I simply answer i don't know. Most of the time, i wouldn't even exert any effort at all, but when it comes to other people, I can give a definite answer, and even give them proper treatment. At work some would laud my performance, but at home i turn out to be one of the lousiest.

I know that they expect me to have answers regarding their health related concerns, seeing that I'm the only physician who's readily available to them, but I still get annoyed by the fact that they fail to see that sometimes, I just want to be completely free from anything medically related. There are times when I just need a break from it all. Sometimes, I just need to be free to do the things I want to do, and be away from the things that I feel I am only forced to do out of necessity.

Right after graduation, I failed to recognize that my grandmother had varicella zoster infection despite its classic presentation... as a licensed physician, that was the first negligence on my part. And during her repeated bouts of congestive heart failure, i would find myself at a loss even though I have treated dozens of patients who were brought to the emergency room and presented with the same condition. i seldom check on her numerous medications and insulin shots... who knows if she hasn't been taking the correct dosages. And when it came to my grandfather, i used to hate all those conversations we had during dinner when he kept on asking me all those health related questions as soon as I get home from work. When i'm in such a bad mood, I simply answer with a yes or no. He never had much trust in doctors, that's why he often relied on folk medicine. Looking back, maybe there were many instances when he would have opened up his mind to the legitimate practice of medicine, and i was the one who was capable of opening his mind... yet all those times, I chose to brush him off. Who knows, if he had consulted a doctor early enough, his cancer could have been diagnosed in an early stage, and he could still be alive today.

When i came back home, I noticed that he had lost a lot of weight... his clothes seemed a little too large even though they were old. And he was telling me that he felt very weak, and he was asking me for a possible cause. When I am presented with a patient who complains of weakness accompanied by weight loss, i would immediately suspect cancer. But in his case, i wonder why it didn't occur to me as quickly. And looking back on his last night, I knew that he was suffering from respiratory distress and he was obviously having a very difficult time, i didn't really do anything. i should've gotten my grandmother's oxygen tank when his ran out even though she didn't want to share--- she didn't need it at that time, she just wants oxygen to help her fall asleep... I should've given some analgesic to take away the pain... and I should've demanded that he be brought back to the hospital even though it was agreed upon that we'll just wait for him to expire at home, because he was clearly in respiratory distress and to simply wait for him to die wasn't the right thing to do... I had the opportunity to do all those things, but I didn't. Because when I'm inside our house, i choose to be crippled... i choose to be incapable, unreliable, useless.

i found myself outside the mausoleum. Aside from the wind blowing softly, everything was still. It was locked from the inside, so i just stood outside for a few minutes. Maybe unconsciously, i knew it was where I was headed. i didn't really know why i went there. I knew all that's left inside is just a body... cold and lifeless, undergoing the slow process of decomposition. I doubt if i still believed in the myth of the afterlife, and I knew that any word i would say couldn't really reach anyone. But just for the sake of it, with the wind and the earth as my sole witnesses, I said sorry... for all the things i have done, and for all the things I haven't done.

Sunday, April 11, 2010

Thunderstorms

I used to think that i was over this phase...

I used to think that it was just a phase, something that i had to go through, until it's over and done with...

after so many years, it rears its ugly head once again...

Ever since I got home I've been in a state of depression. Either I'm pissed off about something, or i just feel so lonely for no apparent reason. That is my baseline.

I've been that way for years... my emotions just fluctuate every now and then, but these fluctuations never veer far from the baseline.

But since I got back i've felt so much worse. The fact that i'm not doing much work has given me time to reflect on the things i've done and haven't done for the past couple of years, and my realizations have been so depressing.

And with the recent death of my grandfather, together with the feelings of guilt that came along with it... it has led me to an even deeper state of depression.

During dinner, I began to notice things... and i began to look at my family with disdain. How my grandmother's bad traits have been showing. How my mother appears to be some sort of a user. How my brother doesn't give a f*ck about anything at all. How everyone could act so happy, just like that, as if nothing has happened, as if nothing has changed. And of course, how my father can piss me off with such ease as always.

At the dinner table i remained quite. I felt as if i was about to burst. I kept playing with my food, just as I did when I was a kid whenever I didn't feel like eating... while they went about with their idle conversation.

i just want to go away. i just want this stage in my life to end. If i stay here for long, I will surely go crazy.

And that's when I thought about doing something drastic. That's when I thought about the things that filled my thoughts those many years ago. back when I wanted an easy way out. Back when I would let irrational thoughts cloud all logical thinking.

But I knew all i had to do was take a drink. Calm down and take one drink. It always pulls me away from my state of melancholia, albeit temporarily. I just fear that the day might come when I'll grow tired of such temporary relief...

Because as of now, i'm so tired of my life as it is.

Wednesday, April 07, 2010

Epilogue

If someone asked me a few days ago questions pertaining to death, I would have answered in a nonchalant manner. It’s not something I’m afraid of. It's not something that saddens me. It’s part of the natural order of things, and death will come to everyone sooner or later. I have encountered so many deaths in my few years of medical practice, that I have become desensitized with the whole idea of death. Except for a few patients that I have been seeing regularly for a few weeks or even a few months, I have no deep emotional attachment to most of the dying patients that I have encountered. Once they’ve taken that last breath, I would check for definite signs and pronounce them dead in a very systematic manner. After one patient, I could easily proceed to the next. After all, once a person has died all that remains is a lifeless body, made up of organ systems that have simply ceased to function.

But that was me yesterday. This is how I am now. After more than a month in the hospital, we finally decided to bring our grandfather home. I often advice relatives of terminally ill patients to just bring the patient home and let him spend the last remaining days of his life in a familiar environment together with his loved ones, even though I absolutely had no idea of what it would feel like, how it can be both physically and emotionally draining. Such a recommendation looks so good on paper that I thought it was also the best decision to make with regard to my grandfather. The basic necessities were bought, and one room in our house was renovated to make it look like a hospital room, complete with all the basic equipment. Two private nurses were hired, so that means less work for us. However, more pressure was set on me because I was the one that they would call whenever there were problems. Everything was manageable though, and my grandfather seemed to be getting stronger, even though I knew that was quite impossible. He spends less time sleeping, he can carry conversations again, and the manifestations of psychosis seemed to have lessened a bit. But I knew in the back of my head that whatever sort of reprieve that we were experiencing back then was only temporary. Back in March i thought he wouldn’t even reach April… the fact that we were able to bring him home was nothing short of a miracle.

It was on Tuesday morning when things took their turn for the worse. He barely woke up again, and I wasn’t able to have any decent conversations with him again. Around lunch time I noticed that he was gasping for breath. He was trying to tell me a lot of things, but all that I could make out was something like… he was having a very hard time, he was finding it difficult to breath, and he wants to give up. Oxygen was administered, and after a few minutes he fell asleep. I knew back then that in an ideal setting, he should be intubated already. But it was agreed upon that we would just wait for the inevitable at home. Bringing him back to the hospital wouldn’t do much good anyway. And if it could add a few more days in his life, he may not even be aware of those extra few days anymore. It would probably just prolong the agony.

After midnight I went back to his room... though he was asleep he was obviously in respiratory distress. He woke up when I tried to listen to his lung sounds, and he just looked at me without saying I word. I wasn’t even sure if he recognized me. I smiled and said everything’s okay, and then he fell asleep again. It was on Wednesday morning when the nurses called me up again to check on him. He was lying on his bed as always, he looked exactly the way he was each time I checked on him on most mornings. Except this time, I felt no pulse. I couldn’t hear any heartbeat. There was no spontaneous breathing. Both of his pupils were fixed and dilated, and all his extremities felt very cold. I’ve been so used to the sight of death that I felt nothing at first, but when everyone started crying I felt tears welling up. I knew that it was coming and I thought that I was already prepared for it, but it seemed as if I wasn’t. I tried so hard to fight those tears but ultimately it was a losing battle. A few hours ago I witnessed him gasping for breath, a few hours ago he looked me straight in the eye and I told him that everything was okay even though we both knew that it was not. And now that he has expired, I was the one who would pronounce him dead.

I knew the exact moment when an endotracheal tube should have been placed. I knew the exact moment when vasopressors should have been started. I knew the exact moment when we had to do CPR and when those intravenous injections of epinephrine could have helped... and I wondered if I should have done those things instead of doing nothing. But looking back, those things wouldn’t be able to do much good anyway. All those life saving measures are only temporary and cannot sustain life in the long run. Doing so would only prolong his agony. I just wished I could have given something to have made it easier. I didn’t even give him anything for the pain. We ran out of oxygen during the wee hours of the morning and there was nothing I could do to help him breathe. Looking back, I just wish that he wasn’t in pain or in any form of agony. I just wish that he didn’t experience any form of hardship. I just wish that the last remaining minutes of his life didn't prove to be difficult for him... and I wish that he died with a sense of fulfillment, without any physical nor emotional burden... I hope that he died peacefully.

It has been a long day and I haven’t even slept yet. He had specific instructions that he did not want to have a wake. He just wants a short service in church, and then we should proceed to his burial afterward. Everyone had to do his part for all the necessary arrangements, and with everyone’s help, we managed to pull it off. We picked up some formal clothes in his closet, thinking of what he would want to wear... and what would look best on him. At the church, after mass, when we all took turns at dousing his coffin with holy water, I couldn't even look at his body without breaking in tears. By 6 PM, we were already at the cemetery back at his home town. The sun was setting on the horizon and the wind was blowing softly as we finally laid him to rest. Everything was so surreal, I could have sworn that it was all just a dream. The atmosphere was serene and for me, it was close to perfection. If he was still alive, I knew that he would be happy with what we all saw. We did exactly as he wanted, and taking all things into consideration, i would say that we did a good job.

We got back home at around 8 PM. Everywhere I looked, there are things that reminded me of him. I got so used to his daily routine through the years, that I would half expect him to show up. 8 PM... that’s the same time everyone usually gets home from work. That’s also the same time he goes up to his room upstairs to sleep, and we would see him on his way up and we would all kiss him good night. At 6AM, I would always expect to see him eating breakfast, and by 8AM I would expect to see him running around the garden as I’m leaving for work, doing his exercise routine. By 11 AM if I’m at home, I would expect him to call me, asking me to join him for lunch. At 5:30 PM he eats dinner, and he would always ask me if it was really all right to take that one shot of brandy after dinner so that it would help him fall asleep. Everyday, at those specific times, I would expect to see him going through his daily routine... his routine that I took for granted and never gave much attention to because I have become so used to it... and after a while reality would set in and I would begin to remember that he's gone... i would realize that i won't be seeing him anymore. I would realize that he'll no longer be there.

I entered my grandparent’s bathroom and the smell of pomade admixed with his aftershave lingered in the air as always. That was the same scent that I’ve smelled as I kissed him on the cheek that last time while he was still confined in the hospital. In the kitchen there are all sorts of herbal medicines in the cupboard... he was never fond of “manufactured” medicines, and we always had minor arguments regarding all those stuff that he used to take. In the garage his car is parked next to mine, that vintage Mercedes Benz that he refused to give up no matter what, despite the many offers from vintage collectors. I would always remember the distinct smell of its old leather interior, and how I always found it embarrassing to ride that car when we were in elementary school because all the other kids rode in cool and modern cars. When I went upstairs, I saw the makeshift gym that he has filled with equipment bought from those home shopping channels on TV, and I would always remember how he tells me I’m wasting money with my gym membership because he thought everything that I needed was already there. In the living room there’s still that Lazy Boy chair, where he sits all day just watching TV or sleeping when he was already too tired to move around the house... and now it's just an empty chair. Inside the makeshift office I saw the words “dada 56 years old” scribbled on the wall. I wrote those words directly below his picture on that wall back when I was 5, to commemorate his 56th birthday. My dad said that dada was how I called my grandfather when I was 2, and somehow it just stuck. Me and my siblings call him such, even to this very day. Scattered on the desk, I see lots of empty billing forms for the tenants in his apartments. Years ago he taught us this weird formula that he made up which was needed to arrive at the proper total billing. He said we needed to learn all that because we will be the ones who would manage his business when he’s gone. During summer he would bring my brother and me to help him do those basic repairs because when he’s gone we are the one’s who would take care of his business... it’s funny that now, both of us would want nothing to do with it. I went up to his room and I remember that talk we had last November, when he said that there’s nothing greater than remaining in one’s own country and serving his own people... and I answered that there’s no money to be earned here, that’s why I want to search for greener pastures. I can’t afford to be a hero or a saint after all. When I got home back in February, that time we talked in his room was also the last time he slept there, because he grew tired of going up and down the stairs already. His body wouldn’t allow him even if he wanted to. He was asking me a lot of questions about his health, and I had to cut it short because I still had plans for the evening. After that he grew too sick. That was the last meaningful conversation that we had.

All this familiarity has resulted into such a huge emotional investment. That’s the reason why his lifeless body is so different from all the rest. That's the reason why reality refuses to set in. I kept crying as I was holding his hand yesterday, wishing for him to still be able to feel my touch for one last time. I wish I could have said something better that last time we spoke, and if I only knew that yesterday was his last, I would have spent all day beside him instead of being holed up in my room studying. There are things that we couldn’t change, and there are things that we couldn’t take back, no matter how hard we try. He has been a part of my life for as long as I can remember, and will all those things that I wish I should have done still in the back of my mind, it makes it so hard to let go. I kept holding his hand for more than an hour since he passed away, denying the fact that the hand I was holding was no longer the hand of my grandfather. It was just a hand attached to another lifeless body, made up of worn out organ systems that have finally ceased to function...a lifeless body that has finally succumbed to the disease... and nothing I could do can ever change that fact. Nothing I could do can ever bring him back.